Naomi House & Jacksplace supports children, young adults and their families from across central southern England. Each family has their own unique story to tell, and as they bravely speak through the videos and written stories below, you can find out how the hospices are there to support them on good days, difficult days and last days.
In this story, Lucy tells us all about family life with congenital muscular dystrophy and how Jacksplace has given her independence and freedom when she needed it most. Also included is a poem Lucy wrote about Jacksplace.
Read Lucy's Story22 year old Charlie, who visits Jacksplace, was born with Ataxia-Telangiectasia, a rare condition that affects the nervous system, immune system and makes the risk of getting various cancers high. This is his story, in his own words.
Read Charlie's StoryAs a result of difficulties at birth, baby Amelia had severe brain damage, cerebral palsy, four limb quadriplegia, blindness and very severe epilepsy. This is her story, told bravely by mum, Debbie.
Read Amelia's StoryWhen Jessica was pregnant, the couple found out that baby Hector had trisomy 18. Most babies with this condition die before or shortly after being born. This is Hector's story.
Read Hector's Story